How would you describe cystic fibrosis?
Cystic fibrosis (CF) is an inherited disease in which the body makes very thick, sticky mucus. The mucus causes problems in the lungs, pancreas, and other organs. People with cystic fibrosis (SIS-tik fye-BROH-sis) get lung infections often. Over time, they have more trouble breathing.
What are the primary characteristics of cystic fibrosis?
Cystic fibrosis is an inherited disease characterized by the buildup of thick, sticky mucus that can damage many of the body’s organs. The disorder’s most common signs and symptoms include progressive damage to the respiratory system and chronic digestive system problems.
What are 5 facts about cystic fibrosis?
Emily of Emily’s Entourage shares interesting tidbits and lesser-known facts about life with Cystic Fibrosis (CF).
- People with CF can’t be together.
- CF and Tay Sachs are tied as the most fatal Jewish genetic diseases.
- Our skin is super salty.
- We are master deceptors.
- The nickname for CF is 65 roses.
How does cystic fibrosis affect the body?
CF causes thick mucus that clogs certain organs, such as the lungs, pancreas, and intestines. This may cause malnutrition, poor growth, frequent respiratory infections, breathing problems, and chronic lung disease. There is no cure for CF.
What is life like with cystic fibrosis?
Living with a chronic disease, such as cystic fibrosis, can be emotionally challenging. Although moments of sadness and anxiety due to the uncertainty of your health may come and go, depression and persistent anxiety should be treated as part of your overall health and emotional wellness.
How is cystic fibrosis monitored?
lung function testing with spirometry (including forced expiratory volume in 1 second [FEV1], forced vital capacity [FVC], and forced expiratory flow [FEF] 25–75%) in adults, and in children and young people who can do this. If spirometry is normal at a routine review, consider measuring lung clearance index.
How does cystic fibrosis occur?
Cystic fibrosis occurs when both genes in the pair have a mutation. A person with cystic fibrosis inherits one CF gene from each parent. Cystic fibrosis is a genetic disorder caused by inheriting a pair of genes that are mutated or not working properly.
What are 2 interesting facts about cystic fibrosis?
Cystic fibrosis is a rare disease. The most affected group is Caucasians of northern European ancestry. About 30,000 people in the United States have cystic fibrosis. The disease affects about 1 in 2,500 to 3,500 white newborns.
How does cystic fibrosis affect quality of life?
Anxiety and depression symptoms are significantly associated with health-related quality of life in people with cystic fibrosis. Analysis of our data indicated that anxiety and depression symptoms impacted health-related quality of life in its broadest sense, and affected physical, emotional, and social functioning.
Can a person with cystic fibrosis live a normal life?
Living with cystic fibrosis varies, as each person’s body may experience different symptoms and side effects. The typical life expectancy for someone with CF is mid-30s. As treatments have improved over the years, patients with CF are now living into their 40s and beyond.